Thursday, June 13th | |
08:00-09:00 | Registration |
09:00-10:00 | Conference Opening CeremonyModerator: Jana Kritt |
09:00-09:30 | Opening ceremony - Konstantin Rebrov, Tallinn Children's Hospital , Estonia Opening ceremony - Janek Mäggi, Tallinn Children's Hospital Foundation , Estonia |
09:30-10:00 | „First 20 years of EEMCPDM“-Marek Jóźwiak, Poland |
10:00-10:30 | Body posture and stabilityModerators: Freeman Miller, Mikko Mattila |
10:00-11:15 | „What is the evidence for conservative treatment in neuromuscular scoliosis?“-Freeman Miller, USA |
10:30-11:00 | „Are the indications for scoliosis surgery different in CP, NMD and spina bifida?“-Mikko Mattila, Finland |
11:00-11:15 | Oral Abstracts |
11:00-11:05 | O1 - Children’s spine deformity in adults: the role of balance - Ona Lapteva, Lithuania |
11:10-11:15 | O2 - Lithuanian experience in neuromuscular early-onset scoliosis - Giedrius Bernotavičius, Lithuania |
| Coffee break, exhibition |
11:45-13:00 | Neuromuscular diseasesModerators: Antigone Papavasiliou, Inga Talvik |
11:45-12:05 | „SMA -Treatment options - Is there a chance for a cure?“-Katarzyna Kotulska-Jóźwiak, Poland |
12:05-12:25 | „New treatment options for Duchenne muscular dystrophy“-Katarzyna Kotulska-Jóźwiak, Poland |
12:25-12:45 | „Experience in SMA treatment in estonian population“-Inga Talvik, Estonia |
12:45-13:00 | Oral Abstracts |
12:45-12:50 | O3 -Fatty Acid Hydroxylase associated Neurodegeneration (FAHN): a case report and the importance of diagnostics - Alisa Rjabikova, Latvia |
12:50-12:55 | O4 - Real-world one-year rehabilitation of cerebral palsy in Estonia: an analysis of population-wide data - Grete Elanor Palgi, Estonia |
12:55-13:00 | Discussion |
13:00-14:00 | Lunch, exhibition |
14:00-15:45 | Spasticity reductionModerators: Marek Jóźwiak, Tarmo Areda |
14:00-14:15 | „Botulinumtoxin and spasticity: pro“-Marcin Bonikowski, Poland |
14:15-14:30 | „Botulinumtoxin and spasticity: contra“-Antigone Papavasiliou, Greece |
14:30-14:45 | „Intrathecal baclofen : long term results“-Teele Meren, Estonia |
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14:45-15:00 | „Selective dorsal rhizotomy : long term results“-Jeremy Bauer, USA |
15:00-15:15 | „The evidence based rehabilitation approaches to improve the outcome of SDR“-Anna-Liisa Saare, Switzerland |
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15:15-15:30 | „Implementation of SDR program in small population country“-Tarmo Areda, Estonia |
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15:30-15:40 | „Functional therapy after SDR treatment. Summary of therapeutic plans. Therapeutic possibilities at the OLINEK Intensive Care Center“-Aleksandra Rosłoniec and Anna Stemplowska, Poland |
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15:40-15:45 | Oral Abstracts |
15:40-15:45 | O5 - An overview of the cases of spastic diplegia subtype of cerebral palsy in the Children’s Clinic of Tartu University Hospital - Liis Rull, Estonia |
15:45-16:15 | Coffee break, exhibition |
16:15-18:00 | TransitionModerators: Shlomo Hayek, Deirdre McDowell | 16:15-16:30 | „Transition from childhood to adulthood for disabled children in different countries“-Dafna Guttman, Israel |
16:30-16:45 | „Habilitation for the real world“-Deirde Mcdowell, USA |
16:45-17:00 | „Do AI and technological change improve inclusion and adaptive options for humans with disabilities“-Marek Jóźwiak, Poland |
17:00-17:15 | „What do we know about QoL in the disabled community?“-Garen Koloyan, Armenia |
17:15-17:30 | „Transition to adult care for Myelomeningocele – a change of perspective seven years after establishing a center for adults with severe disabilities“-Stephan Martin, Germany |
17:30-17:35 | Oral Abstracts |
17:30-17:35 | O6 - Investigation of age-related gait decline and potential mechanisms behind it in adults with cerebral palsy - Anders Gravholt, France |
17:35-17:45 | Roundtable „Life with disability.“ |
17:45-18:00 | Invited guest - CP dancer Matvei Serednitskiy, Estonia. At the foyer of conference floor |
18:00 | End of the first day |
18:00-19:00 | Walking tour from Sokos Hotel Viru to JAIK (free of charge, pre-registration only) |
19:00-21:00 | Networking event at JAIK, Telliskivi 60a/9, does not include entertainment |
Friday, June 14th | |
09:00-10:45 | RehabilitationModerators: Jeremy Bauer, Evrim Karadağ Saygı |
09:00-09:30 | „Principles and philosophy behind high-tech motion analysis“-Elke Viehweger, Switzerland |
09:30-09:45 | „Gait analysis in mid-income countries“-Uri Givon, Israel |
09:45-10:00 | „Effective rehabilitation in young adults“-Kirsti Pedak, Estonia |
10:00-10:15 | „Consistent functional improvement Rehabilitation vs sport“-Evrim Karadağ Saygı, Turkey, |
10:15-10:30 | "Becoming a paralympian" - Pii Metsavas, Estonia |
10:30-10:45 | Oral abstracts |
10:30-10:35 | O7- Changes in Lower Extremity Kinematics with Free and Restricted Arm Swings in Children with Cerebral Palsy - Meltem Çelik, Turkey |
10:35-10:40 | O8 - Long-Term Results Equinus Deformity Treatment Of The Feet By Ulzibat And Strayer Surgery Methods In Children With Cerebral Palsy- Paviel Rakhman, Ukraine |
10:40-10:45 | O9 - Investigation of the stress-strain state of the foot model before and after surgical treatment by different methods - Paviel Rakhman, Ukraine |
10:45-11:15 | Coffee break, exhibition |
11:15-13:00 | MyelomeningoceleModerators: Uri Givon, Beth Padden |
11:15-11:30 | „What can we expect from fetal surgery in spina bifida?“-Sevgi Sarikaya-Seiwert, Germany |
11:30-11:45 | „How orthotic devices can improve function in spina bifida?“-Marc Damerau, Germany |
11:45-12:00 | „Social continence in spina bifida“-Ann Paal, Estonia |
12:00-12:15 | „Do improvements in shunt surgery correlate with mental ability?“-Sevgi Sarikaya-Seiwert, Germany |
12:15-12:30 | „Neuromotor and cognitive outcome at 5 years of age after open fetal repair for spina bifida“-Beth Padden, Switzerland |
12:30-13:00 | Oral Abstracts |
12:30-12:45 | O10 - Estonian national registry of the patients with neural tube defects: 2023 update and findings - Ann Paal, Estonia |
12:45-13:00 | O11 - The Competence Centre of Rare Diseases in Estonia - Katrin Õunap, Estonia |
13:00-14:00 | Lunch, exhibition |
14:00-15:45 | Orthotics and roboticsModerators: Elke Viehweger, Dafna Gutman |
14:00-14:15 | „Robotics in postsurgery rehabilitation“-Marek Jóźwiak, Poland |
14:15-14:30 | „Orthotics - the higher the better ,the lower the worse?“-Shlomo Hayek, Israel |
14:30-14:50 | „3d preoperative planning to see the future better“-Shlomo Hayek, Israel |
14:50-15:00 | „Do our good intentions in prescribing orthotics correlate to our patients QoL?“-Julia Funk, Germany |
15:00-15:30 | Oral Abstracts. Roundtable |
15:00-15:05 | O12 - Effects of whole-body vibration on bone mineral density of children with Down syndrome: a systematic review - Uljana Matvejeva, Latvia |
15:05-15:15 | O13 - Differentiated Surgical Treatment Of Knee Flexion Contractures In The System Of Complex Orthopedic Treatment Of Children - Paviel Rakhman, Ukraine |
15:15-15:25 | O14 - Treatment of knee flexion deformity in cerebral palsy; surgical correction of extreme deformities - Sema Ertan Birsel, Turkey |
15:25-15:30 | O15 - Enhancing cerebral palsy gait analysis with 3D Computer vision: a dual-camera approach - Elli Valla, Estonia |
15:30-15:45 | Discussion |
15:45-16:15 | Coffee break, exhibition | 16:15-17:35 | Varia. Small but ableModerator: Jürgen Rünk |
16:15-16:30 | „Mucopolysaccharidosis: what's new?“-Natalie Weinhold, Germany |
16:30-16:45 | „Whats new in the treatment of achondroplasia?“-Jürgen Rünk, Estonia |
16:45-17:00 | „Down's syndrome - better inclusion, longer life?“-Susanne Lebek, Germany |
17:00-17:15 | „New therapeutic options in developmental epileptic encephalopathies (DEEs)“-Sergiusz Jozwiak, Poland |
17:15-17:30 | "Disability aesthetics in Contemporary art"-Kerly Ritval, Estonia |
17:30 | End of the second day |
19:00-23:00 | Gala dinner (extra charge applies, The Teachers’ House, Raekoja plats 14) |
Saturday, June 15th |
09:00-10:30 | Hip surveillanceModerators: Garen Koloyan, Gunnar Hagglund |
09:00-09:30 | „Hip surveillance -past, present, future“-Gunnar Hägglund, Sweden |
09:30-10:00 | „Are the indications for hip surgery different in CP, NMD and spina bifida?“-Freeman Miller, USA |
10:00-10:10 | O16 - A Five-Year Population-Based Study on the Radiological Outcomes of Hip Surgery on the Radiological Outcomes of Hip Surgery - Nikolaos Kiapekos , Sweden |
10:10-10:25 | „Presentation of EEMCPDM survey results“-Jana Kritt, Estonia |
10:25-10:45 | Discuccion |
10:45-11:15 | Coffee break, exhibition |
11:15-13:30 | Patient day session in English: "Patients to doctors, doctors to patients" | Patsiendipäeva sessioon Eesti keeles “Patsiendid arstidele, arstid patsientidele” |
| - 11:15-11:30 „Transition problems in the life of Estonian patients“- Katrin Nugis, EPIKoda, Estonia
- 11:30-11:45 „Introduction of the POGA centre-Egija Bidina, Latvia
- 11:45-12:00 "Introduction of the OLINEK Intensive Care Center" - Poland
- 12:00-12:15 "More satisfied and active people as a result of modern neurorehabilitation - introduction of Haapsalu Neurological Rehabilitation Centre"- Mari-Liis Ööpik-Loks, Estonia
- 12:15-12:30 Special quest: Is it a privilege to be 21 years old with SMA?- Hendra Raud, Estonia
- 12:30-12:45 Video: Resilience and Recovery: A Young Man's Journey with Brain Injury- Adeli, Estonia
- 12:45-13:00 „Is sailing for everybody?"- Kylli Haav - Erilised MTÜ, Estonia
- 13:00-13:15 - „The development of physical abilities and health indices in healthy children with different physical activity" - Eva-Maria Riso, Estonia
- 13:15-13:30 "Nutritional interventions in cerebral palsy" -Aleksandra Šilova
- 13:30-13:45 "Provision of proactive support for children who need permanent support due to a health condition" - Marge Hindriks, Department of Children and Families, Ministry of Social Affairs, Estonia
- 13:45-14:00 - „Participation of persons with lived experience in the clinical pathway – from research to practice" - John Coughlan, Cerebral Palsy in the European Union Association, Luxembourg
| - 11:15-11:30 „Erikülaline: In Memoriam Allar Tael, Suu- ja jalaga kunstnik“, Kersti Harjakas, Estonia
- 11:30-11:45 "Erikülaline: Kas olla SMA diagnoosiga 21aastane on privileeg?" - Hendra Raud
- 11:45-12:15 „Kaisa teekond: SDR operatsioonist taastusravini“ - Aigi Mänd, Haapsalu Neuroloogiline Rehabilitatsioonikeskus
- 12:15-12:30 „Eesti PCI patsientide lapseeast täiskasvanuikka üleminek: väljakutsed“ - Katrin Nugis, EPIkoda
- 12:30-12:45 Video: Elu tserebraalparalüüsiga: perekonna vaatenurk- Adeli Rahvusvaheline Rehabilitatsioonikeskus
- 12:45-13:00 Spastilisuse vestlusring - Tallinna Lastehaigla neuroloog Inga Talvik, füsioterapeut Cristina Lõokene
- 13:00-13:07 "SDR ka täiskasvanu eas?" - Annika Niilus
- 13:07-13:15 - „Liikumispuudega inimene kirjutab ju lihtlausete ja trükitähtedega!?" - Maarja-Liis Mölder, luuletaja
- 13:15-13:30 - „Inimese vajadustele vastava rehabilitatsioonisüsteemi loomine: teenuse ja toe integreerimine tervisevaldkonnaga" - Brit Tammiste, Sotsiaalministeerium
- 13:30-14:00 „Ümarlaud: Patsiendid ja spetsialistid“ Osalevad: Füsioterapeut (Jaanika Ailt), logopeed (Helen Saareoja), ETL (Elke Mäemurd), lapsevanem (Liis Türbsal), EPIKoda (Katrin Nugis), Sotsiaalministeerium (Brit Tammiste), TÜK Lastefond (Eveli Ilves)
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14:00 | Closing session |
Workshops programme | |
Thursday, June 13 | |
11:45-12:30 | "Bracing in neurologic scoliosis cases"- Neja, Germany |
13:30 | "How to use Kids Fracture tool in practise?" - Topi Laaksonen, BCB Medical |
16:00 | "How to use Kids Fracture tool in practise?" - Topi Laaksonen, BCB Medical |
Friday, June 14 | |
09:00-09:45 | "How to organize interdisciplinary care for severely impaired patients" - Stephan Martin, Brigit Mahlmann, Germany |
10:00-10:45 | "How to use Kids Fracture tool in practise?" - Topi Laaksonen, BCB Medical |
11:00-11:45 | "Idiopathic Toe Walking: An update on diagnosis, genetics and treatment outcomes" - Jeremy Bauer, USA |
13:30-14:15 | Orthotic devices - Gottinger, Germany and Ortoosimeister, Estonia |
16:00 | "How to use Kids Fracture tool in practise?" - Topi Laaksonen, BCB Medical |